[This post was first published on The Health Care Blog on 3/1/13. The original title was “How to keep track of multiple health issues” but THCB’s retitle is so much better that I’m using it here too. Many interesting comments on the post are here.]
One of the many challenges I face in my clinical work is keeping
track of a patient’s multiple health issues, and staying on top of the
plan for each issue.
As you might imagine, if I’m having trouble with this, then the patients and families probably are as well.
After all, I don’t just mean keeping up with the multiple recommendations that we clinicians easily generate during an encounter with an older patient.
I
mean ensuring that we all keep up with *everything* on the medical
problem list, so that symptoms are adequately managed, chronic diseases
get followed up on correctly, appropriate preventive care is provided,
and we close the loop on previous concerns raised.
This, I have found, is not so easy to do. In fact, I would say that
the current norm is for health issues to frequently fall between the
cracks, with only a small minority of PCPs able to consistently keep up
with all health issues affecting a medically complex adult.
What kinds of things fall through the cracks? Here’s a list off the top
of my head (for the primary care of adults with multiple chronic
conditions):
- Pain
- Insomnia
- Incontinence
- Cognitive impairment
- Depression and/or anxiety
- GERD
- Falls
- Advance care planning
- Moderate anemia
- Chronic kidney disease
- COPD (esp Stage I and II)
- Difficulty managing medications
Why
do these fall through the cracks? I suppose it’s a combination of lots
of little things. To begin with, many of these are problems that don’t
lead to easy concrete steps a PCP can quickly implement within a short
follow-up visit. Within a busy clinic day, it’s almost impossible to not
find oneself gravitating towards the path of least resistance and least
cognitive effort.
Then there’s the too many people involved issue. Many patients,
especially in Medicare, see several specialists. It becomes easy for
clinicians to assume that another clinician will address an issue.
Then
there’s the way most primary care visits are structured. The biggest
problem is that they are short (10-15 min), which makes it hard to
address more than 1-3 issues. Patients often have their own acute
concerns, which can make it hard to follow up on chronic conditions. And
many doctors spend only minimal time reviewing the chart before the
visit, or even after the visit.
And finally, we have our clinical charting habits, and our charting systems.
Charting and comprehensive problem list management
Historically,
most charting systems haven’t prioritized keeping excellent track of
all problems affecting a patient. In the old paper chart system, many
providers kept a problem list within the chart, but there was no
mechanism for ensuring regular checks on every item there. Furthermore, a
problem mentioned by a patient, even if documented in a progress note,
might easily never make it onto the problem list.
In truth, the old system stunk from a
lets-be-sure-to-not-lose-track-of-issues perspective. We essentially
left it to individual clinicians to figure out what needed to be
followed up on, and they cobbled together various error-prone
strategies, like leaving little to-do lists scribbled in the margins of
their notes, briefly looking over the assessment & plan from the
last 3 visits, or trying to skim the whole problem list at the annual
physical.
Needless
to say, patients and families were pretty uninvolved in this process,
unless they were in the minority who take careful notes and try to keep
their own problem list. This meant that not only were patients often
poorly informed as to their health issues, but that we were missing an
opportunity to let them help us make sure we didn’t forget about any
important health issues.
And now we are all transitioning to EMRs. This makes things generally
a little better, but not a lot, because again, the focus in designing
EMRs has been to help doctors document for billing and for in-the-moment
clinical care, rather than making it easy to keep up with a longer
comprehensive list of ongoing problems.
For
example, although I really like the EMR system I currently use (MD-HQ),
when I start a clinical note, I’m faced with a blank text box. Sure, I
can easily look at the list of past medical problems (and insert it into
the note), or the recently used ICD-9 codes, but that’s not the same as
seeing what problems I need to follow-up on, either because I addressed
them recently, or because it’s been a while since they were addressed.
Meanwhile,
the patients and caregivers are also lacking a way to keep up on the
problem list, since this isn’t currently shared through the patient
portal.
Can’t we do better? Really, I end up thinking that what I need is a
health issue management system, accessible to me and the patient, that
can help us keep track of all the medical problems and their status.
Primary care as ongoing problem list management
What would this look like? Well, I’ll start by describing what I do
now, and then I’ll offer some thoughts on what I think would help me.
- During a visit, I almost always organize my clinical thinking around “problems.” These end up listed in my assessment and plan at the bottom of the note, where I usually include a comment as to the status, the differential (if applicable), and my own plan for managing and following.
- I provide written recommendations, listed by problem. However, as I pointed out in my blog post on multiple recommendations, the patient’s version doesn’t usually list every problem that I documented in my note. (I find that people get overwhelmed by a list that is too long, plus the more I write in layman’s terms, the more time it takes me.)
- I review the past problem list in each visit. At a follow-up visit, I look at the last visit’s problem list, in order to follow-up. This means I often copy and paste the assessment and plan, and then edit the details.
- But I’ve run into little operational problems with this. For example, now that I provide a fair amount of care by phone and email, many encounters generate a shorter less structured note, so I find myself scrolling back through my notes, looking for one that has a longer problem list.
- I try to keep track of problems not recently addressed. It’s not always possible to address everything listed in the previous visit (people come in with new concerns, among other issues.) So sometimes I have a “Not addressed today,” section at the bottom of my list, but I’m not as diligent as I’d like to be, especially when things are busy.
- Besides, it’s hard to not notice that this isn’t exactly standard of care among other docs; the other day, I actually reviewed a PCP’s note that just said “Findings stable. No change in plan.” Sigh.
Some
problems I list are actual ICD-9 diagnoses, but not all. For instance,
in my multimorbid adult patient population, a problem like shortness of
breath could be due to COPD, CHF, anemia, or all the above. I also deal
with a lot of geriatric problems like falls, functional decline,
cognitive impairment, etc, which are usually multi-factorial in nature.
Ideas for facilitating collaborative and comprehensive problem list management
Here’s what I think would be helpful to me:
- If each patient’s chart included a list of problems. And
this should always be viewable by the patient. Patients could be able
to add problems from their end, but then we will also need a method to
reconcile and periodically try to streamline the list, or we’d likely
end up with some redundant problems.
- If I could use the problems as tags for other data in EMR. When
we get a diagnostic study back, we should be able to tag it with one or
more relevant problems. We should also be able to easily tag
medications and other aspects of the treatment plan with a given
problem. Ideally the system would intelligently propose problem tags as
you work (a brain MRI in a patient with a cognitive impairment problem
should probably be tagged “cognitive impairment”; PFTs are likely COPD,
etc)
- The ability to link a follow-up activity to a problem. Let’s
say we decide to follow-up on depression symptoms in 8 weeks. As I list
the depression item in my assessment and plan, it would be nice to be
able to tag it with some kind of prompt for future action. That way, if I
start a SOAP note in 3 months, the overdue problem should pop up.
Better yet, in seven weeks the system should remind me (and the
patient!) that this problem is coming due, and encourage me to
electronically send a symptom questionnaire to the patient, so that we
can get the right data gathered prior to the visit.
- If it were easy to view associated history, studies, and future events for a given problem.
I often want to look back and see how an issue has evolved over time.
It should be possible to see all the related SOAP notes, studies,
hospitalizations, recommendations made to patient, pending follow-up
actions, etc, when we look up a problem.
- If SOAP notes prepopulated with recent problems, or overdue problems.
In this computerized age, why do I have to scroll back through my notes
to figure out what I was last working on when thinking about this
patient? Would be nice if EMRs could help with this.
- If the patient and I could negotiate which problems we’ll address prior to the visit.
Rather than discuss this right during the visit, we should be able to
set a little agenda before hand. This would allow us both to prepare a
little better. We could also better anticipate how much time to allot
for the visit.
- If the system were smart enough to propose data relevant to a given problem.
If it’s time to review anemia, show me the CBC trend and anemia-tagged
meds. If the issue is CHF, show me the most recent echo summary. We
clinicians should be able to tweak these to our preferences, but having
to create each grouping of relevant data from scratch would be a little
too bad.
Of
course, since most of my patients also see other providers, I’d need a
way to integrate what those docs do into the data for each problem, and
this would be tough if they’d labeled problems differently. But that’s
part of a PCP’s (or geriatrician consultant’s) job: to keep track of
what the specialists said and did and integrate that into the
comprehensive care of the patient. Even just being able to tag an
incoming faxed consult report with a problem would help a little.
Summing it up
Keeping
track of an older patient’s lengthy problem list is difficult, and it’s
easy for issues to fall through the cracks and get forgotten.
We need EMRs to support clinicians in partnering with patients and
families to keep better track of ongoing problems. I would love to see
EMRs move towards really facilitating the organization of clinical data
by problems, and then supporting patients and clinicians in properly
following those problems.
Patients
and families should be able to access their problem list and see the
plan for each. This would help them understand their health (because
just looking at today’s clinical notes probably won’t cut it), plan for
visits, and ensure that all their health issues are followed up on (i.e.
engagement!).
[Consider checking out the comments over at The Health Care Blog; comments here are also very welcome!]
